I started this project because of a need to reach out with others living with this disease. When I was diagnosed, I only had my family and two friends that had knowledge of my diagnosis. I relied on them for the support, but they were definitely not prepared, because of assumptions they had about the best way to proceed.
Speaking with someone that Gets it because they have it is the best therapy I have found. I have a friend that I have worked with on several IT projects that had some symptoms, and was diagnosed with MS, and he understood my position. He gave me insight in what to expect, what questions to ask, and how to handle the roller-coaster emotions. whenever he came over, and we had normal conversations, or medical conversations I would feel less stressed. Unfortunately he moved to Florida, and later found out he is diagnosed with CIS. He did not have enough symptoms and lesions visible for MS. He is happily living in Florida and enjoying his children and not as stressed as he was working in a family business.,
Around the three year anniversary of my diagnosis, I was more comfortable with living with MS. My son gave me a tattoo on my arm that signifies that I have a permanent condition and wear it with pride. I have accepted it, and try to work with the symptoms that I have most of the time.
This year I attended the MS Walk at forest park. I posted it on social media so all of the people I know have MS would know where and when I would be. The Event was awesome, (Except for the weather) . I wore my MS T-shirt that I bought online, and had a chance to show it off to a few people when I would feel warm enough to open my hoodie. It says “I am not drunk… I have MS. well maybe a little drunk.
I can be contacted by email at admin@stlmsgroups.com, or mikedelp@gmail.com. By Phone 636-748-7345 . If I am not expecting a call, it might go to voicemail. Leave a message and i will return the call.
